RESOURCES FOR CONSUMERS

 

The NCC provides the following resources to assist consumers and their families in accessing information about genetic services and resources at a national level.  For individual state and region information, beyond the genetic services directory, please visit your regional collaborative website

 

• Find Genetic Services 

 

• March of Dimes 
  • A Parent's Guide to Newborn Screening
  • Information about Newborn Screening Tests
  • Information about Birth Defects and Genetic Conditions 

 

• Build Your Own Care Notebook (provided by the American Academy of Pediatrics)

 

• Genetic Alliance