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June 2010: Volume 4, Number 2
- Knowledge and Attitudes of Parents on NBS and Bloodspot Storage
- Reports from our Regional Collaborative Groups
- Advocate Partnership Program
- Genetics/Genomics Competency Center
April 2010: Volume 4, Number 1
- National Dialogue on Genetics in Primary Care
- Reports from Our Regional Collaborative Groups
- Trust it or Trash It
December 2009: Volume 3, Number 3
• The Iowa Family Participation Project
• Reports from Our Regional Collaborative Groups
• Tuberous Sclerosis Deaths in the United States 1983 - 1997
• Comparison of Wilson-Junger & ACMG Evaluation Tools for Addition of Pompe
Disease to Universal NBS Panels
June/July 2009: Volume 3, Number 2
• Using a Community-Based Approach to Educate the African American Family About
Genetics, Family Health History, and Improving Health
• Reports from Our Regional Collaborative Groups
• Six Informal Coversations with the National Centers Working to Improve the System of
Services For CYSHCN
March 2009: Volume 3, Number 1
• It's All About Access!
• Reports from Our Regional Collaborative Groups
• Overview of HRSA's Telehealth and Telemedicine Resources
• Developing a Successful Telehealth Program
• Findings of the National Telegentics
December 2008: Volume 2, Number 4
• Pilot Projects and Mini-Grant Activities Showcase Unique RC Expertise
• Reports from Our Regional Collaborative Groups
• Culturally Competent Approaches to Improve Genetic Literacy Among
Asian-American Women
August 2008: Volume 2, Number 3
• Genetic Services Community Embraces Quality Improvement Movement in US Healthcare
• Genetics Education at the March of Dimes: Genetic and NBS Pocket Facts
• Reports from Our Regional Collaborative Groups
June 2008: Volume 2, Number 2
• Expanded Patient-Specific Data Collection Activities to Inform and Improve Public Health
• Consumer Genetics Education Network (CGEN)
• Reports from Our Regional Collaborative Groups
March 2008: Volume 2, Number 1
• F2F HICs and RCs Hit Their Stride When Working Together
• Listing of Federally Funded Family-to-Family Health Information Centers
• Reports from Our Regional Collaborative Groups
December 2007: Volume 1, Number 4
• Musings on a Pedigreed Theme: The Genetic Family History Then and Now
• Making Community Partnerships Work: The GENE and CGEN Projects
• Reports from Our Regional Collaborative Groups
• A Family Health History Tool to Fit Every Community
August 2007: Volume 1, Number 3
• Collaborative Facilitates NBS for CF in Western States
• Reports from Our Regional Collaborative Groups
• NCC Noteworthy
June 2007: Volume 1, Number 2
• ACMG to Continue as the National Coordinating Center
• Genetics in Underserved Commnities: The GENE Project
• Reports from Our Regional Collaborative Groups
• LEND Training in Genetic Counseling
March 2007: Volume 1, Number 1
• State of the National Coordinating Center
• Report from the AAP Division of Children with Special Needs
• Reports from Our Regional Collaborative Groups
• NCSL Genetic Technologies Project Report
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