Heartland Genetics and Newborn Screening Collaborative
Office Location: Little Rock, Arkansas
States: Arkansas, Iowa, Kansas, Missouri, Nebraska, North Dakota, Oklahoma, South Dakota
Program Co-Directors: Klaas Wierenga, MD and Bradley Schaefer, MD
Program Manager: Lori Williamson Dean, MS, CGC, LGC
Mission Statement: "The Heartland Genetics and Newborn Screening Collaborative is focused on ensuring the best possible outcome for individuals with heritable disorders and optimizing the health of the population throughout the life cycle by improving understanding and awareness of genetics; expanding access to health care; and translating new findings to improve the quality of care within an eight-state region."
Feature Resources/Activities: The main activities of the Heartland Regional Collaborative are centered around the goals of improving: access to expanded newborn screening, professional and public genetics literacy, equitable access to genetics evaluation, counseling and testing services, and cooperation between neighboring states within the region. The Heartland's "Telemedicine Manual For Clinical Genetic Services
" is also an excellent resource for how to start a telegenetics clinic for health care providers.
Heartland Regional Coordinating Center
Arkansas Children’s Hospital
1 Children’s Way Peds Genetics, Slot 512-22
Little Rock, AR 72202