Data Collection and Evalution

Shared definitions and uniform data collection methods are essential to the evaluation of changes to access to services for patients with genetic conditions, especially the medically underserved. The NCC, in collaboration with the seven RGNs, NGEFC, and HRSA, to develop measures that demonstrate the impact the RGN/NCC/NGEFC and develop and share data reports that demonstrate findings.

Coming Soon!

Confluence Space for Workgroup Members