About the Session

Accessing genetic services represents an ongoing challenge for all, but especially the medically underserved. The HRSA-funded Regional Genetics Service Collaboratives (RCs) have undertaken projects to understand those challenges and begin to consider ways to address them to improve access to care, but also to improve the care provided by genetics providers. It is not just getting patients to an appointment, physically or through telemedicine, it is also engaging them in a culturally meaningful and appropriate manner. Be a part of a dialog that showcases engagement of populations of diversity with genetic conditions, the success of such engagement in overcoming barriers to access to care, and unique approaches to understanding how to reach medically underserved populations in a culturally attuned manner. Audience members should bring their questions, their experiences, ideas, and expertise for a thoughtful conversation.

Learning Objectives
1. Describe the challenges and successes of reaching medically underserved patients with genetics conditions.
2. Explain the benefits of strong community engagement between patients and providers in achieving improved access to care to genetic services. 
3. Consider the potential benefit to genetics providers in supporting diverse populations.
4. Develop an approach to improving patient experience through use of recognition, respect, and reciprocity.


Trish Thomas
Family Voices National Director of Diversity and Outreach, Family Voices
Presentation Title: Engagement of Diverse Populations with Genetic Conditions

Gene Hallford, PhD
Assistant Professor of Research
College of Medicine, Department of Pediatrics, Section on Genetics
University of Oklahoma Health Sciences Center
Presentation Title: Recognition, Respect, and Reciprocity: The Importance of Community Engagement in Overcoming Barriers to Genetic Services Access in Underserved Populations Across the Heartland

Lori Willaimson Dean, MS, CGC, LGC
Assistant Professor
Department of Genetic Counseling
University of Arkansas for the Medical Sciences

Funding Acknowledgement

This session is sponsored by the National Coordinating Center for the Genetic and Newborn Screening Services Collaboratives, the Mountain States Regional Genetics Collaborative, and the Heartland Regional Genetics Collaborative. The  National Coordinating Center for the Genetic and Newborn Screening Services Collaboratives is funded by U22MC24100 $798,031 (6/15-5/17), awarded as a cooperative agreement between the Maternal and Child Health Bureau/Health Resources and Services Administration, Genetic Services Branch, and the American College of Medical Genetics. The Mountain States Regional Genetics Collaborative e is funded by H46MC24095, awarded as a grant from the MCHB, HRSA, Genetic Services Branch to Texas Health Institute; and the Heartland Regional Genetics Collaborative is funded by H46MC24089, awarded as a grant from the MCHB, HRSA, Genetic Services Branch to University of Arkansas for the Medical Sciences.