NCC Community Conversation
Think about how you access information? What are your preferences in reaching and communicating with other colleagues and patients? How convenient would it be for an app to relay information about a special diet? What if a state legislature was considering dramatic cuts to newborn screening funding and how might social media help? The interaction between healthcare and technology continues to grow exponentially and increasingly has a central role in the communication between patients and providers. Be a part of a dialog between consumers, healthcare providers, and advocacy organizations as they discuss the role technology plays in empowering the relationship between consumers and providers. Discussions will highlight the utility of patient registries and social media in connecting individuals with rare conditions; how social media has played a role in advocacy; ways in which patient registries led by consumers are helping research; demonstrate the connective power of technology through a demonstration of one app, Doxy.me; and highlight telemedicine opportunities for providers. Throughout the discussion, audience members will be encouraged to share their own experiences, ideas, and expertise.