Resource Repository 

Explore resources developed by the NCC, the seven regions, NGEFSC, and other national partners. The repository can be organized by intended audience or topic area (sub-categories are listed below). The filter function will allow you to search by resource name, organization that developed the resource, topic area, or intended audience.


Care Coordination | Consumer Advocacy | Disease Specific | Education | Emergency Preparedness | Evaluation | Family Health History | Genetic Service System | Healthcare Access and Financing | Long-Term Follow-Up | Medical Food | Medical Home | Newborn Screening | Region Specific | Telegenetics | Transition

Intended Audience

Patients and/or Families | Genetics Providers | Non-Genetics Providers | Public Health | Educators | Regional Genetics Networks | Policymakers | Insurers