To demonstrate the feasibility of answering the 14 public health questions to understand public health long-term follow-up by entering data into and utilizing the LPDR.
Phase 1 - The target is to have between 4-5 states enter data in April, but no later than May 15, 2016.
Phase 2 - A phase in of additional states will occur as NCC and NBSTRN review the results of the initial phase 1 of this project, and make adjustments. Ideally, by the end of the calendar year 2016 all 22 states will have entered data into the LPDR.
Signed data sharing/participation agreement--this will be discussed on the informational webinars and is very similar to current agreements utilized by the NBSTRN in the Virtual Repository of Dried Bloodspots (VRDBS).
Phase 1: data entry of the elements to answer the 14 public health questions, no later than May 15, 2016.
Participation at an in-person meeting. Funds will be available for 2 people from the participating states. Additional states and RCs are invited to participate; however, NCC does not have funding to cover travel/hotel. This meeting will be webcast as well.
Post-phase 1 project review and discussion of challenges and successes.
Review of the data dashboard.