Advisory Committee


The Advisory Committee to the NCC Regional Support Service Model Workgroup will help further the RSSM workgroups discussions and proposed models through a regularly scheduled call.  

Meeting Materials

including recordings


March 11th

January 26th


January 8th



November 20th

October 8th

September 15th


Jill M Abramson, MD, MPH, FAAP

Chief, Medical Policy and Consultation Section
California Department of Health Care Services

Janice Bach, MS, CGC
Region 4 Co-Project Director

Debbie Badawi, MD
Chief, Child and Adolescent Health Unit
Maryland Department of Health and Mental Hygiene

Joann Bodurtha, MD, MPHD, FAAP, FACMG
NYMAC Co-Project Director

Luba Djurdjinovic, MS
Executive Director
Ferre Institute

Marcia Ehinger, MD
Chief, California Birth Defect Monitoring Program
California Department of Health Care Services

Lisa Feuchtbaum, DrPH, MPH
Chief, Program Development and Evaluation Section
California Department of Public Health

Pat Furlong
Parent Project Muscular Dystrophy

Susanna Ginsburg, MSW
SG Associates Consulting, LLC

Steve Holve, MD
Chief Clinical Consultant
Indian Health Service

Celia Kaye, MD, PhD (Chair)
Professor Emeritus

Michele Lloyd-Puryear, MD, PhD

Jana Monaco, MS
Advocacy Liaison

Kimberly Noble Piper, RN, Bs, CPH, CPHG
Executive Officer, Center for Congenital and Inherited Disorders
Iowa Department of Public Health

Robert Ostrander, MD
Valley View Family Practice

Ifeyinwa Osunkwo, MD, MPH
Assistant Professor of Pediatrics
Emory University School of Medicine

Bradley Schaefer, MD, FAAP, FACMG
Heartland Program Co-Director

Jerry Shorter

Jill Shuger, MS
Project Officer
Genetic Services Branch
HRSA/Maternal and Child Health Bureau

Rani Singh, PhD, RD, LD
SERC Co-Project Director

Beth Tarini, MD, MS
Assistant Professor of Pediatrics
University of Michigan

Tracy Trotter, MD, FAAP
Diplomat- American Board of Pediatrics

Susan Waisbren, PhD
Children’s Hospital Boston

Marc Williams, MD
Director, Genomic Medicine Institute


Michael Watson, PhD, MSC, FACMG

NCC Project Director
American College of Medical Genetics and Genomics

David Flannery, MD, FACMG
Medical Director 
American College of Medical Genetics and Genomics 

Alisha Keehn, MPA
NCC Associate Program Director
American College of Medical Genetics and Genomics

Megan Lyon, MPH
NCC Project Manager
American College of Medical Genetics and Genomics