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National Resources
Advisory Committee on Heritable Disorders and Genetic Diseases in Newborns and Children
Consumer Organizations / Support Groups / Resources
Genetic Alliance - Project Connect
Genetic Service Branch/Maternal & Child Health Bureau
National Center for Cultural Competence
National Conference of State Legislatures
Policies and Laws - Public Health Genetics
Policy Links - Genetics / Professional Organizations
Professional Health Care Organizations
State Newborn Screening Programs (PDF)
State Resources
Genetics Resources for State Planning
State Birth Defects Program Links
US Map with Genetics and Newborn Screening Collaborative Links
US State Map with Genetics Program Links
US State Map with NBS Program Links
Federal Resources
CDC Division of Birth Defects and Developmental Disabilities
CDC Division of Laboratory Sciences
CDC External Quality Assurance Resources
CDC Genomics and Disease Prevention Information System
CDC National Survey of Children with Special Health Care Needs
CDC Office of Genomics and Disease Prevention
CDC Quality Assurance Program Online
Genetic Education Materials Database (GEMdatabase)
Genetics Education and Underserved Populations
Genetics Education Needs Evaluation (GENE) Project (2005)
Genetics in Primary Care Complete Educational Training Program(2001)
Genetics Literacy Project (2001)
Genetic Services Policy Project Web site
HRSA Electronic Web Portal for Grants Activities
HRSA Geospatial Data Warehouse
HRSA/Maternal and Child Health Bureau Homepage
HRSA/Maternal and Child Health Library
HRSA/Maternal and Child Health - Title V Information System
ICHP- Institute for Child Health Policy
NICHD - National Institute of Child Health and Human Development
NIH Genetic and Rare Diseases Information Center
NIH National Human Genome Research Institute
NIH National Library of Medicine
NIH Special Interest Group - Birth Defects and Teratology
National Network of Libraries of Medicine
Telehealth Resources
National Library of Medicine National Telemedicine Initiative
Office for the Advancement of Telehealth (OAT)
American Telemedicine Association (ATA)
Association of Telehealth Service Providers (ATSP)
Academic
Genetic Science Learning Center
Genetics Through a Primary Care Lens
Kansas University Medical Center
Genetic Dilemmas in Primary Care
Ethical, Legal, and Social Issues (ELSI) Links
Newborn Screening (NBS)
ACMG/HRSA Newborn Screening Report (2006)
History/Overview of Newborn Screening
National NBS Information Reports: 2000 1999 1998 1997 1996
National Newborn Screening Information System (NNSIS)
NBS International Programs and Resources
Newborn Screening ACT Sheets and Confirmatory Algorithms
Reports and Publications(CDC, AAP, ACMG etc.)
Current Newborn Screening Conditions by State (Click here for MS-Word version)
NBS Laboratory Links - Commercial and Non-Profit
Birth Defects
